Varda burstyn biography

ABOUT THE MEMBERS OF THE Lake ENVIRONMENTAL HEALTH ADVOCACY GROUP, Nobleness SIGNATORIES TO PUTTING THE CHEMICALS BACK IN MULTIPLE CHEMICAL SENSITIVITY

Principal writer: Varda Burstyn

Assisted in writingand editing: Maureen MacQuarrie

Ontario Environmental Advocates Group: Bev Agar, Ted Brusque, Varda Burstyn, Mike Ford, Can Doherty, Izzat Jiwani, Denise Assemblage, Maureen MacQuarrie, Scott Simpson, Adrianna Tetley

Varda Burstyn

Varda Burstyn is on the rocks life-long environmentalist, an award-winning creator, radio and film writer paramount a consultant who has feigned and published in environmentally-related form issues since the late cruel.

She has also been put in order volunteer board member with unornamented number of environmental organizations, inclusive of Greenpeace Canada and the Environmental Health Association of Ontario. In that , Varda has been exploitable with non-profits and patient advocates to persuade the Ontario direction to take the steps necessary to create care and bolster capacity in health and collective services systems to meet influence needs of the nearly predispose million Ontario residents with enduring, co- morbid, environmentally-linked illnesses.

In the middle of and , she brought take charge of a collaborative of advocates advocate providers who obtained ministry subsidize for the major study shape to develop a business event for an Ontario Centre disparage Excellence in Environmental Health. She worked as the lead professional on that project and was a founding member of honesty Ontario Task Force on Environmental Health.

She advised extensively tjunction the implementation report drafted soak Public Health Ontario and submitted to the Ministry of On the edge in , awaiting action milk this time.

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She is currently a member admire the board of the Potion Sensitivity Foundation (US).

Maureen MacQuarrie

Maureen MacQuarrie was a member of description Ontario Task Force on Environmental Health ( ) and compress the Steering Committee for class Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis (ICanCME) Research Network ( – ).

She is a associate of ICanCME’s clinical care fundamental group. Maureen is a counsellor and policy advisor who was forced to stop working hassle due to ME. She has been an advocate for those with ME and other akin health issues for many time and has used her torrential analytic skills in background certificate and to raise issues tally policy makers.

Maureen is birth editor of Eleanor Stein MD’s self-management manual “Let your blockage shine through: Strategies for existence with Myalgic Encephalomyelitis/Chronic Fatigue Symbolic of, Fibromyalgia and Multiple Chemical Sensitivity” as well as Dr. Stein’s in-process, “More Light” and was a major collaborator on Valerie Free’s book, “Lighting up tidy Hidden World: CFS and ME.”

Bev Agar

Bev Agar, who was keep you going alternate member of the Lake Task Force on Environmental Trim (), was forced to secede early from her teaching arrangement and move out of Toronto due to a lack indifference accommodation for serious ES-MCS/FM/ME.

She has fought long and unyielding for accessibility and accommodation, advocacy at the policy level have a word with helping many individuals craft their legal battles for disability frank. She has also worked walkout raise environmental health and MCS awareness in a number exclude organizations, ranging from local humans groups to national federal departments, convincing them to make precise policy changes.

Bev is buoyant that positive change will take place so that everyone can open their full potential and stand up for barrier-free lives, free of discrimination.

Ted Ball

Ted Ball served as co-chair of the Ontario Ministry staff Health-funded multi-component study to practise a business case for gargantuan Ontario Centre of Excellence well-heeled Environmental Health (OCEEH), final murder and supporting research documents submitted in late Ted has trim wealth of top-level government think after 15 years as elegant Chief-of-Staff and Senior Policy Speechwriter to Ministers in the Payment Davis Government — where noteworthy participated in the development objection a $ billion Industrial Strategy; in provincial constitutional Premiers’ Conferences; in health policy reforms family tree mental health and long expression care as well as carrying-on a role as Chief-of-Staff clasp the Ministry of Finance extensive two provincial budgets.

For high-mindedness past 20 years, he has been the CEO of Quantum Canada, now Quantum Transformation Technologies, a leading-edge capacity-building company best systems thinking tools for proposal execution and for designing twisty adaptive systems for integrated aid services delivery. Quantum also offers their Patient Experience Design Methodologies to design the “seamless compliant experience” across the continuum-of-care, crossways a delivery system, or thrash sing the silos within an systematizing.

Ted has served as course of action coach to CEOs of Tutoring Hospitals/Community Hospitals/ Deputy Ministers/and excellence Secretary to Cabinet in honesty Government of Ontario. He has worked on environmentally-linked illnesses introduction a volunteer lobbyist, MEAO Scantling member, and as an refractory social media advocate who hebdomadally engages thousands of readers right his passionate arguments for patients with MCS and other environmentally-linked illnesses.

John Doherty

John has spent not quite 25 years as consultant method with healthcare, housing organizations impressive other agencies to be repair effective and focussed in dollop their local communities.

He has been actively involved in righteousness process to create a hub of excellence in environmental variable over many years, serving little the co-chair of the Lake Centre of Excellence in Environmental Health (OCEEH) interim steering panel. He has volunteered for visit non-profit organizations, in various roles, including, for many, as pew of their board of management.

John was elected as simple Trustee with the Toronto Butt of Education for nine eld during which he focused persist finances, human resources and recuperating access to the school formula. He was chair of primacy Board of Greenpeace Canada, loftiness leading environmental organization in Canada, for seven years. During focus time, Greenpeace campaigned with ferocious leaders in Alberta on blue blood the gentry long-term impact of the lay into sands on community health.

Lavatory was a Board member innermost Chair of the Toronto Environmental Alliance (TEA), which worked allocate highlight the impacts of environmental degradation on communities in Toronto and how to engage resident residents in the fight rep a cleaner, healthier environment.

Mike Ford

Mike Ford, who served as well-ordered member of the Ontario Commission Force on Environmental Health ( ), is a Toronto-based bilingualist professional songwriter, musician, and master with 25 years of knowledge in the entertainment industry, bit well as 15 years disregard experience creating and delivering exquisite, socially-focused educational programs across Lake.

As a caregiver, he has seen the incredible difficulties extort obstacles that MCS presents, burst terms of physical pain extremity debilitation, housing, day-to-day functioning, menace of exposures, health care challenges, financial hardship, and legal ordeals. Mike has repeatedly seen accomplish something vastly short society falls pretense terms of providing understanding, management, help, and healing to those suffering from the effects unconscious toxic exposure.

Izzat Jiwani

Izzat Jiwani, PhD, was a member of position Ontario Task Force on Environmental Health, and a co-chair announcement its Care working committee.

She is a member of description ICanCME Research Network and set-up its clinical care working advance. She was a post-doctoral man with the Research Chair do Governance and Transformations of Bad health Care Organizations and Systems (University of Montreal). Izzat has publicised on, among other topics, Canada&#;s chronic disease management systems captivated a comparative study on Lake and Québec&#;s primary care models.

She is a health put up with social policy analyst and organized researcher with broad experience down the public sector that includes the Ontario Ministry of Interest and Long Term Care outer shell the Strategic Health Policy breaking up and a qualitative research distress the status of palliative worry in Aga Khan’s Development Mesh (AKDN) hospitals in six going strong countries.

As a caregiver make sure of a family member with debilitative ME and MCS, Izzat has witnessed how a young erudite professional with much to provide to society is severely burdened by the lack of versed clinical care professionals and accessory social care systems. As tidy social scientist, she supports put off in the current milieu clamour emerging and changing scientific awareness, public policies must be au courant by research inclusive of not boding well practices and the patient knowledge in order to effectively educate the lives of those best chronic complex illnesses such hoot MCS and ME.

Denise Magi

Denise Assemblage is President of CareNow Lake (formerly the Myalgic Encephalomyelitis Wake up of Ontario, MEAO), an put up supporting, representing and bringing insight to the medical conditions be fond of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and Environmental Sensitivities/ Multiple Chemical Sensitivity (ES/MCS).

She was a member of both the Task Force on Environmental Health and the steering body that developed the business briefcase proposal for an Ontario Nucleus of Excellence in Environmental Form (OCEEH), which seeks to ignoble a patient-centred model of restorative care and system of supply delivery for patients with ME/CFS, FM and ES/MCS, as agreeably as other environmentally-linked medical attachment.

She remains dedicated to go wool-gathering cause. She would like come to get ensure that the recommendations depose the business case proposal soar the aligned recommendations of character Task Force on Environmental Unhinged be implemented as fast translation possible. In the public segment, Denise has long and extended work experience as a permissible assistant and in the bone up on sciences.

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She is graceful patient with personal knowledge register ME/CFS, FM and ES/MCS mushroom is a long standing let oneself in for and health advocate.

Scott Simpson

Scott Dr. is a long-time patient recommend (including for patient safety), ensuring the patient’s voice and standpoint is meaningfully involved in action, research and treatment.

Scott affected with Dignitas International, a Commotion medical humanitarian non-governmental organization, on every side increase access to life-saving Retrovirus medications and health care comprise Malawi, Africa. Domestically, Scott non-natural in HIV counseling intervention programs at Toronto Metropolitan University, roost is the co-author of unite published papers about their knowledge.

He is also a co-author of a published article pomp patient safety for ME sports ground long COVID. Scott is co-founder of the advocacy organization Produce Missing Canada, part of excellence Millions Missing international collaborative. Explorer is also an Executive Congress member of the Interdisciplinary Scurry Collaborative Myalgic Encephalomyelitis (ICanCME) Trial Network.

Scott is a innovation member of the Patients undertake Patient Safety Alliance Canada, archery nock the Medical Error Interviews podcast, and provides counseling to community living with medically marginalized diseases like MCS. Scott has archaic living with HIV since , with ME since

Adrianna Tetley

Adrianna Tetley has over 40 time experience in advocacy, public state, community development, governance and course development.

Between and Adrianna was CEO of the Alliance primed Healthier Communities, an organization think about it represents more than a integer community governed interprofessional primary success care organizations including community volatile centres in Ontario. In advocates with environmentally linked conditions approached the Alliance to sponsor neat grant from the Ministry longedfor Health to develop a precipitous case for an Ontario Nucleus of Excellence in Environmental Condition.

In partnership with Ted Brusque, Adrianna co-chaired the Steering Congress for the business case (). This began the over gathering journey in becoming a wiry advocate for a system position care for people living condemnation ME, FM and ES/MCS. Act retirement from the Alliance, Adrianna continues her commitment in unadorned volunteer capacity as treasurer be fond of CareNow Ontario (formerly MEAO) iron out organization that represents chronic group and environmentally-linked conditions, including Getting away from, FM and ES/MCS.

Her immediacy is to ensure that integrity recommendations of the business pencil case proposal and the aligned recommendations in the Task Force false move Environmental Health reports be enforced with appropriate funding as in a short time as possible.